TY - JOUR
T1 - Parents' experiences with services and treatment for their children diagnosed with cerebral palsy
AU - Knis-Matthews, Laurie
AU - Falzarano, Mary
AU - Baum, Deborah
AU - Manganiello, Jennifer
AU - Patel, Sargam
AU - Winters, Laura
PY - 2011/8
Y1 - 2011/8
N2 - While there is a considerable body of knowledge investigating the efficacy of constraint-induced movement therapy (CIMT), there is a need for information focusing on parents' experiences when their children receive these services. This qualitative research study initially explored the experiences of four parents with children who are diagnosed with cerebral palsy (CP) and who participated in CIMT using a group format. Additionally, the richness of the information shared by parents provided insights on other important issues related to family supports when raising a child and the availability of resources for children diagnosed with CP. Response analysis from in-depth interviews with parents resulted in three themes: (a) Everything in my family changed when my child was diagnosed with CP and the support I feel from my family makes all the difference in how I cope. (b) It was so hard to get the information and support that I needed for my child. (c) The group format enhanced CIMT for my child and provided social benefits as well. Findings from this study suggest there are benefits of using CIMT in group formats.
AB - While there is a considerable body of knowledge investigating the efficacy of constraint-induced movement therapy (CIMT), there is a need for information focusing on parents' experiences when their children receive these services. This qualitative research study initially explored the experiences of four parents with children who are diagnosed with cerebral palsy (CP) and who participated in CIMT using a group format. Additionally, the richness of the information shared by parents provided insights on other important issues related to family supports when raising a child and the availability of resources for children diagnosed with CP. Response analysis from in-depth interviews with parents resulted in three themes: (a) Everything in my family changed when my child was diagnosed with CP and the support I feel from my family makes all the difference in how I cope. (b) It was so hard to get the information and support that I needed for my child. (c) The group format enhanced CIMT for my child and provided social benefits as well. Findings from this study suggest there are benefits of using CIMT in group formats.
KW - Constraint-induced movement therapy
KW - Group format
KW - Parents' experiences
KW - Qualitative research study
UR - http://www.scopus.com/inward/record.url?scp=80052308820&partnerID=8YFLogxK
U2 - 10.3109/01942638.2011.566806
DO - 10.3109/01942638.2011.566806
M3 - Article
C2 - 21521003
AN - SCOPUS:80052308820
SN - 0194-2638
VL - 31
SP - 263
EP - 274
JO - Physical and Occupational Therapy in Pediatrics
JF - Physical and Occupational Therapy in Pediatrics
IS - 3
ER -