Parents' experiences with services and treatment for their children diagnosed with cerebral palsy

Laurie Knis-Matthews, Mary Falzarano, Deborah Baum, Jennifer Manganiello, Sargam Patel, Laura Winters

Research output: Contribution to journalArticlepeer-review

10 Scopus citations

Abstract

While there is a considerable body of knowledge investigating the efficacy of constraint-induced movement therapy (CIMT), there is a need for information focusing on parents' experiences when their children receive these services. This qualitative research study initially explored the experiences of four parents with children who are diagnosed with cerebral palsy (CP) and who participated in CIMT using a group format. Additionally, the richness of the information shared by parents provided insights on other important issues related to family supports when raising a child and the availability of resources for children diagnosed with CP. Response analysis from in-depth interviews with parents resulted in three themes: (a) Everything in my family changed when my child was diagnosed with CP and the support I feel from my family makes all the difference in how I cope. (b) It was so hard to get the information and support that I needed for my child. (c) The group format enhanced CIMT for my child and provided social benefits as well. Findings from this study suggest there are benefits of using CIMT in group formats.

Original languageEnglish
Pages (from-to)263-274
Number of pages12
JournalPhysical and Occupational Therapy in Pediatrics
Volume31
Issue number3
DOIs
StatePublished - Aug 2011

Keywords

  • Constraint-induced movement therapy
  • Group format
  • Parents' experiences
  • Qualitative research study

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